August 3, 2012

By Rosie O'Donnell

took mish 2 malibu
drove to napa
stopped in big sur
heaven on earth

it was a honeymoon
before the wedding
pure bliss
we laughed loved listened

then blink – it begins
on mothers day
morning pain
that won’t let up

we wander thru the maze of medical mystery
confused – scared
mish gets even smaller
i get even bigger – sugar my solace

i wake many mornings
in a darkened room
on a roll away cot
with good n plenty stuck in my matted hair

undiagnosed – again and again
her pain grew worse
it seemed impossible
no one knew what was wrong

life changes in an instant

desmoid tumors
odd and curious beasts
strong and sneaky
a non cancer that acts cancerous

only 900 cases a year in the US
an orphan disease – beyond rare
only 3 people per million get this
michelle is one of them

she is recovering from surgery in june
getting stronger every day
we have joined the fight against this disease
raising money and awareness

we had to postpone our wedding
re scheduled for next summer
in lieu of gifts -
we ask for donations


Previously published on the author's blog, which also includes a link to make donations.